How to start this update? Hmmmm....well I guess I will start off by saying how sad I was yesterday because I was too sick to drop by The Village Shoe Shop to ask about some new sassy shoes :(.
However, on a good note I had my pulmonary function test yesterday and I think it showed improvement. The doctor didn't talk to me afterwards but I always peek at the results before handing them to the doctors nurse. I didn't see as many red bold numbers as the first time.
I also met with my new dermatologist today and it went very well. She noticed that I have telangiectasias underneath my fingernails which is often associated with Scleroderma. Telangiectasis are red spots caused by the widening of small blood vessels under the skin. They occur under the skin and usually cause no harm unless they become enlarged. This particular dermatologist uses UV therapy to help with the thickening and tightening of the skin but she did not feel that I was at that point. I am very happy with this news because it involves 2-3 days a week at MD Anderson....no thank you! She said I either have a mild form of skin involvement or I am just in the beginning stages.
She was also unhappy (as was my rheumatologist) about the lack of blood circulating in my hands and feet (from the Raynaud's which raged into full purple toes in the middle of our visit, LOL) so she gave me a nitroglycerin cream to help with the cold days we have been having. I go back again in 3 months.
Tomorrow I will call my rheumy to discuss a visit to a Gastroenterologist and I may move up my echocardiogram.
Stay warm everyone!
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