"30 Things You May Not Know About My Invisible Illness" Day 2

4. The biggest adjustment I’ve had to make is: learning to say “no”. Learning that I do have limits and I have to take care of myself. The worst part is 90% of the people I know do not understand this and often get their feelings hurt.  

5. Most people assume:   It's in my head.....after all Systemic Sclerosis is internal and can't be seen.

This blog seems pretty boring tonight.  What do you guys want to know?

"30 Things You May Not Know About My Invisible Illness"

Hey Guys!
I was reading through my tweets today and a fellow autoimmune "spoonie" posted a blog called "30 Things You May Not Know About My Invisible Illness".  Every day she posted a fact about her and her invisible illness which happens to be Lupus.  I have not had much to write about on my blog lately so I thought I would write about my own invisible illness, Scleroderma.  Each day I will post 1 fact or a common question that I often hear.  Today I will post 3 to get the ball rolling :)

1)    The illness I live with is:      I have Systemic Sclerosis which is the internal diffuse form of Scleroderma. Many times Scleroderma comes with an overlapping diseases.  My secondary illnesses include arthritis, Raynaud Syndrome and very soon we may be able to add Sjogrens......but not yet.

2)    I was diagnosed with it in the year:   2011

3)    But I had symptoms since:     My first symptoms appeared when I was about 14 years old.  I constantly felt exhausted and nauseous.  This is also when I was diagnosed with several illnesses that come from Systemic Sclerosis including IBS, endometriosis, Hypothyroidism and Hypoglycemia. Ummmmm, unfortunately I can't blame the Attention Deficit Disorder on the Systemic Sclerosis LOL!

To be continued.......tomorrow night...........if I have enough spoons..............