I have had significant health issues for the past 5 years and was never taken seriously but on Friday, January 28, 2011 I officially became a Scleroderma patient. I had read up on the disease since it had been diagnosed in a prior appointment but that didn't really prepare me for the conversation I was about to have. I was expecting to receive some help with most of my symptoms and then they would monitor everything else as the symptoms came up. Well that was wrong. Apparently Scleroderma has a very predictable course, however it varies from person to person and there is no way to know how quickly it is progressing. I was already being treated for the acid reflux and have a steroid inhaler but now I have to start taking meds that can prevent the other horrible things from happening. An ACE Inhibitor to make sure I do not go into Renal Crisis, a double dose of my acid reflux meds so that I do not aspirate into my lungs and build up scar tissue and last but certainly not least......a medication for this stupid arthritis (that one I am excited about). I also had to schedule an echocardiagram to make sure I do not have Pulmonary Hypertension. The doctor referred me to a dermatologist that may be able to help the tight skin on my fingers (with UV therapy) so that I don't lose any movement.
At first I was so excited to just know what the heck was wrong with me but it has slowly turned to irritation. I do not think I have fully processed everything yet so I will be sure to blog again at my first nervous breakdown, LOL!
Thanks for listening.
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.